It pays to involve patient representatives as an active partner in research. But how to organize and implement patient involvement in a meaningful way in your project? This training focuses on theoretical and practical aspects of working with patient representatives in (medical) research.
Topics
The training is intended for academic researchers. With- or without experience with patient participation.
The training is less suitable for fundamental researchers or basic researchers. If you do want to participate, an intake will follow to align expectations.
At the end of the day you know how patient representatives can be involved to make your research more meaningful. You also know where to find practical information and tools for the next steps in your process. The maximum number of participants in the training is 14, leaving ample opportunity for interaction.
Prior to the training, trainees follow the online knowledge module ‘Roles of Participation’ in INVOLVsupport's online learning environment (about 45 minutes). They also fill in a short intake form with their experiences and their questions to the trainers.
Theory
During the morning session, the preparatory steps of a collaboration between researcher and patient representative are discussed. We will cover some theoretical aspects, interrupted for short practical assignments. Questions that were collected during the intake will be addressed.
Practice
Soon after you will start applying this to your own research. The Participation Matrix is introduced as a tool to help you obtain a better picture of the possibilities and challenges of patient involvement in your research. This is a group exercise, in order to stimulate mutual learning from your own and other’s experiences and ideas. As a result of this brainstorm, you will end up with the first contours of a personal plan of action. Per group, one case is worked out towards a pitch for the entire group. An experienced patient research partner will play an important role during the afternoon programme.
Language
This training is English spoken and includes English materials. The training is also available in Dutch.
Location
The training takes place at the UMCG Onderwijscentrum (internal UMCG address: Winkelstraat 1, 2nd floor).
Casper Schoemaker, patient participation advisor, INVOLV
Casper Schoemaker is a patient participation advisor and trainer for patient participation courses in research, including duo-intervision groups of researchers and patients. He has a lot of experience as a researcher, but also as a patient representative. It is by no means self-evident in the research world that patients contribute ideas and participate in decision-making. Fortunately, there are many young researchers who want to do this, but are not yet sure how. It is very rewarding work to help them on their way so that they can develop a working relationship with their patient partners that suits them both. Doing research together with patients is much more fun and instructive and ultimately leads to results that benefit everyone.
Wendy Wagenaar, patient participation trainer, INVOLV
Wendy is a trainer for courses on patient participation in research, including patient participation in scientific research for patients and assessing research proposals for patients. She has extensive experience as a researcher in the field of rare diseases and is an academic teacher at the Erasmus School of Health Policy & Management. She also has extensive experience as a patient representative in the field of rheumatic diseases.
You will receive a certificate of attendance.
Centrum Bij- en Nascholing from the Wenckebach Instituut voor Onderwijs en Opleiden UMCG in cooperation with INVOLV
Participation is free of charge.
In case of cancellation three weeks prior to the start date or a no-show, an amount of € 100,- will be charged.
This training is also available in Dutch.
Wenckebach Instituut voor Onderwijs en Opleiden
Centrum Bij- en Nascholing
(t) 050-3613558 (e) [email protected]
